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Cycling Legend Davis Phinney's Foundation Launches New Resource to Encourage Living Well With Parkinson's Disease

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Imagine you are one of the 60,000 new U.S. cases of Parkinson's disease diagnosed each year. Where can you turn for accurate information? How can you learn what to expect and how to make things easier? The Davis Phinney Foundation today announced the launch of its Every Victory Counts® manual's second edition, which gives people living with Parkinson's the tools they need to take a proactive approach to self-care from diagnosis through advanced stages of the disease, including the latest information for the recently diagnosed, expanded content specifically for care partners and guidance for living with young-onset Parkinson's.

"From my professional cycling days, I know that attitude, focus and engagement can lead to victory in difficult, demanding circumstances," said Davis Phinney, founder of the Davis Phinney Foundation, Olympic medalist and multiple Tour de France stage winner. "For people like me, it's critical we apply this same approach to our journey with Parkinson's. With the expanded Every Victory Counts manual, we are empowering people to take control and motivating them to find and savor their moments of victory." 

The Every Victory Counts manual, which is endorsed by the American Academy of Physician Assistants, offers rich, interactive content co-authored by Monique Giroux, MD, and Sierra Farris, MA, MPAS, PA-C. It includes worksheets, medication logs and questionnaires, all designed to help people monitor their health, create action plans and facilitate communication with healthcare professionals and care partners. The manual addresses key topics, such as: talking to family and coworkers about the disease, exercise, nutrition, emotional health, deep brain stimulation, medication, behavioral therapies, intimacy and care partner issues.

"Since launching the Every Victory Counts program more than two years ago, we have been encouraged and touched by the positive responses and valuable feedback, which shaped the direction and content for the second edition," said Polly Dawkins, executive director, the Davis Phinney Foundation.

Some of the most powerful content in the manual is provided by more than 50 people with Parkinson's who share compelling and inspiring insights on topics such as exercise, diet and intimacy. These testimonials offer wisdom on daily living with Parkinson's and help create a sense of community for readers. 

"People living with Parkinson's actively seek information, yet are still unsure how the disease will impact different aspects of their lives over time, what options may be available to them and what questions to ask early on in the disease," said Monique Giroux, MD, manual co-author and medical director of the Movement and Neuroperformance Center of Colorado. "Every Victory Counts provides a roadmap that can help readers to identify with the experience, see a variety of approaches and feel motivated to take action."

Readers can complement the manual with online worksheets, the Living Well Challenge™ webinars, expert Q&A videos, "Keys to Wellness" and more, available for free on the Foundation's website.

The Every Victory Counts program manual is available for a donation of $27.00 and can be ordered at http://davisphinneyfoundation.org/living-pd/victory-counts/getyourcopy/ or by calling 1-855-PHINNEY. All manual proceeds will support Davis Phinney Foundation-funded Parkinson's research and education programs.

Parkinson's Disease
An estimated 1.5 million Americans are living with Parkinson's disease today. The disease affects men and women alike, and its prevalence is considerably higher in the over-60 age group, although diagnosis at a younger age is increasingly common.

Davis Phinney Foundation
The Davis Phinney Foundation was created in 2004 to help people with Parkinson's disease live well today. Its major initiatives include: the Every Victory Counts® manual, developed by movement disorder experts to provide practical ways to live well with Parkinson's; The Victory Summit® symposia series, which brings experts into communities to share advances in science, care and to inspire those affected by the disease to take action; the Living Well Challenge™ educational webinar series; and, the funding of research focused on exercise, speech and other quality of life therapies. Visit the website: http://www.davisphinneyfoundation.org.

Wendy Emanuel
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